Yes, so I now have tinnitus to add to my list of “is it because of my MS?” things.
I haven’t found any research online to connect the two, but I’ve spotted others talking about it in terms of their MS.
I don’t know. It might be related. Might be a bi-product of the morning pressure headaches/buildup/grogginess I get after waking. Maybe the pressure build up has irritated the relevant nerves, or the relevant part of the brain that deals with hearing.
It is not too bad, just an annoying little high pitched whine in my ears. Never really notice it during the day. It is more pronounced on waking thanks to the pressure buildup thing that happens then, or when I’m trying to fall asleep (like now) and I would give anything to switch the little noise off and get some quiet.
It’s like when you leave something electrical switched on in the other room, and the faint little buzz or beep is just noticeable, but very annoying.
I don’t mind it so much when I wake up and start my day with my legs feeling achy and shaky*.
It is when it sneaks up on me. Cause I’ll feel fine to start with. Like I could have a trouble free day.
I’ll have been up and about actually feeling fairly ok, then an hour later, or two or three…or I’ll be out taking a walk, running errands etc… and it starts… the ache at the top of the legs. Right in the inner joint. Then the hips (one or both) join in (the muscles, not the joint itself). The heaviness growing into the thighs and into the back of the legs. Then the aches in the ankles and the worst bit (or the bit for me that really makes me stop what I’m doing)… the soles of the feet.
I don’t know. I prefer the advanced warning over the sneak attack.
*Edit: Just to clarify. I do mind having it in the first place…
So, I’m trying to decide whether I should go outside at any point today, or give myself another day or two’s rest.
I’m almost back to normal after the fun of the last few days except my right leg and foot is still feeling stiff and achey. Not sure if the exercise of walking is the best thing to do today or not. Would my leg be thankful or not?
The thing is I need to go buy food.
Meaning a walk downhill and uphill, and/or climbing on and off of a bus (depending on which supermarket I decide to go to). And navigating myself around people and things etc.
:s
Told you…
All is essentially back to normal. Fatigue is minimal, woosiness is minimal (still there, but barely). Everything is fine… except for one thing… the right side of my right foot. Have you ever had a bone that needs to crack, or be moved back into place? I have that kind of feeling along the right edge of my right foot.
I keep wiggling and flexing my foot and toes hoping that whatever it is will click into place, but it hasn’t yet.
Quite painful when walking. Not horribly so, but if I focus my weight in the wrong place it hurts. Like walking downstairs and shifting weight from one foot to the other? Ouch…
I was going to go out and about today, but think I will give myself another day before I do any walking…
Although nothing to panic about I have returned to feeling “not quite right” over the past few days.
My legs are aching with fatigue (especially the right one), my feet and ankles too. My head is abuzz with something. Not quite light-headedness but getting there. Trying to find energy to get up after waking is ridiculous (I can, but only after ages of lolling about waiting for my brain to say it is ok to move). Once I’m up I seem to be better. For a while, then the drowsiness returns.
The thing is I am fairly sure I know what is behind it all. It is “that time of the month” as polite people like to say, something which I do have problems with from time to time anyway (achiness, fatigue, cramps). Not always, and not always very bad, but occasionally yes.
Normal fatigue + monthly fatigue = oh for crying out loud fatigue.
I do suspect that in a few days all will be back to “normal” again. I just need to get my rest.
The problem is telling people here what is happening. My father (an elderly gentleman) is not the kind of person you can talk to about “women’s issues”. He’s not the kind of person I can talk to about my illness either. He cares, he just doesn’t understand it. Flies into a panic at the mere thought of illness anyway. I don’t think he’s ever had anything beyond a cold himself. Even then he doesn’t like talking about them.
Nothing wrong = “Are you ok?”, “Are you alright?”, “Anything wrong?”… (constantly).
Something actually wrong = ……. (not a peep)
Lately I’ve been working on the ever-troubled sleep routine. Trying to keep to a regular schedule. With mixed success.
Some nights I’m just not sleepy at all, other nights I’m tired but just can’t switch off (not just an MS thing I know).
Anyway, I notice my feet ache more whenever I stay up late, not exactly sure why that would be. Usually they return to “normal” once I do finally get some sleep.
It’s like my legs need the sleep even if the rest of my body would rather stay awake.
Just one of those things perhaps. I always find myself curious about little things like that.
Legs almost feel back to “normal”, except my achy ankles which are always an issue.
Also beginning to suspect this current problem is a simple* lower back ache that is knocking into the weakness in my legs. Making my walking go funny.
Now looking into getting myself a new mattress.. which to be honest I can’t really afford so it will need to be cheap as chips… but if it sorts the problem perhaps it is the better choice…
* simple… if such a thing can be called simple.
Still sore but I can move. Wondering whether to go out for my walk or leave it another day.
I really do feel like “stretching my legs” but a bit worried it will aggravate things again.
(Not really)
As yesterday was the last Friday of the holiday fortnight, and as I didn’t have anything I really needed to do I gave myself permission to have a lazy day. You know? Sleep late, curl up in front of the tv, read. That kind of thing. Which to be honest I don’t get to do very often.
Only I’m paying for it today. My legs are aflame with achyness. Hips and lower back are the worst but it is all down the legs. My ankles too making me wary about walking anywhere. Trying to wash my hair this morning was a joke. Because leaning over to rinse under the water meant stretching the lower back/hip area in ways it didn’t want to stretch. I had to do “the Giraffe”* to get through it.
It is like the area constantly needs to stretch. Only stretching doesn’t really make the achyness go away.
I had wanted to go out and run some errands today but I’ll put it off till tomorrow. Maybe even Monday. Give my legs a chance to calm down.
So as well as not overdoing things, it looks like I can’t be inactive at all either. Not even for one day.
* The Giraffe… have you seen how a giraffe tries to bend down and drink some water? Legs all awkward and slowly lowering itself down? That kind of thing. :p
